Welcome! Let us begin by me introducing myself. My name is Georgina and this is my personal website about how it is to live with Arthrogryposis. I welcome parents that may have a child with Arthrogryposis or anyone simply doing research on this diagnosis. This may be something fairly new to some of you, so to help I have given you the best definition I could find for Arthrogryposis.
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According to the Arthrogryposis Multiplex Congenita Support, Inc.'s featured book Arthrogryposis: A Text Atlas, the definition for Arthrogryposis is as follows:
Arthrogryposis, or arthrogryposis multiplex congenita (AMC), as mentioned previously, is a generic term used to describe the presence of multiple congenital contractures. The word arthrogryposis, arthro, joint, gryp, curved, literally means curved joint (implying that it is fixed or stuck in the curved position). Thus, arthrogryposis multiplex congenita means curved (fixed) joints in many (multiple) areas of the body, which are present at birth (congenita).
A contracture is the limitation of movement of a specific joint, in other words, a joint that does not have a full range of movement. The contractures in most forms of arthrogryposis are usually nonprogressive and involve more than one body area. The word congenital simply means that the contractures are present at birth; that is, they have occurred or been produced before birth. For the purposes of this book, arthrogryposis is defined as congenital nonprogressive limitation of movement of two or more joints in different body areas. Occasionally, there are conditions in which contractures are progressive.
Arthrogryposis, or arthrogryposis multiplex congenita (AMC), as mentioned previously, is a generic term used to describe the presence of multiple congenital contractures. The word arthrogryposis, arthro, joint, gryp, curved, literally means curved joint (implying that it is fixed or stuck in the curved position). Thus, arthrogryposis multiplex congenita means curved (fixed) joints in many (multiple) areas of the body, which are present at birth (congenita).
A contracture is the limitation of movement of a specific joint, in other words, a joint that does not have a full range of movement. The contractures in most forms of arthrogryposis are usually nonprogressive and involve more than one body area. The word congenital simply means that the contractures are present at birth; that is, they have occurred or been produced before birth. For the purposes of this book, arthrogryposis is defined as congenital nonprogressive limitation of movement of two or more joints in different body areas. Occasionally, there are conditions in which contractures are progressive.
To visit the Arthrogryposis Multiplex Congenita Support, Inc. website, please visit www.amcsupport.org